Life has a way of introducing story twists for all of us, circumstances that make us pause, as was the case for Heath White.
I remember a classmate I had in college who had a child with down syndrome. To this day I still remember his glistening eyes and quivering voice when he told me that “no one would can ever know how special they are until it is your child, it is literally like having an angel in your home, someone who isn’t affected by the weight of the world.” This particular classmate wasn’t Mr. religious, so his comment took me off guard and has stayed with me all these years. For him to say something like that took courage, those words had deep significance for him – he was speaking from deeply personal experience.
I personally can relate with some of Heath White’s feelings about having a child born with imperfections. Although Maxwell’s condition with BPES is different and less severe than down syndrome, it’s hard medicine to swallow when you first discover your child isn’t “perfect”. But as time has passed, I have learned by experience, that oft-times “true perfection” is found in the “imperfect”. What usually needs to be corrected is my highly flawed perspective.
The world is more often than not backwards in its interpretation of what is good, what is considered to be whole, or perfect. I have discovered that God often masks and shields more perfect souls into imperfect bodies to help change our misguided ideas of perfection. It’s more for us to learn to be more like them, and less about our fears that they won’t look like us.
I think when the world around us begins to muddy our definition of perfection – we get off kilter, distorted in our views of things as they really are, and it’s children like my good friend’s daughter Lucy, who remind us that perfection is found in the imperfect.